Reshared from Kelly Alioth Drinkwater
Mar. 27th, 2013 11:06 amThe genome sequence of the HeLa cell line was just published without anyone even asking the family for their consent.
I'm honestly really surprised that Henrietta Lacks' descendants continue to get fucked over this way, after the book came out. In my circles, everyone read it or at least heard about it. You'd think we would have made /some/ progress on research ethics by now. AAAARGH.
http://sandwalk.blogspot.com/2013/03/who-owns-your-genome.html
Who Owns Your Genome?
I'm honestly really surprised that Henrietta Lacks' descendants continue to get fucked over this way, after the book came out. In my circles, everyone read it or at least heard about it. You'd think we would have made /some/ progress on research ethics by now. AAAARGH.
http://sandwalk.blogspot.com/2013/03/who-owns-your-genome.html
Who Owns Your Genome?